An article has been published in The Guardian newspaper highlighting the situation with Tofersen and NICE. The piece includes comments from a person living with MND, UK MND RI co-director Professor Ammar Al-Chalabi, and the MNDA.

See link below for the full story:

https://www.theguardian.com/society/2024/apr/21/people-with-motor-neurone-disease-in-england-and-wales-fear-losing-access-to-life-extending-drug