Professor Young has been a consultant neurologist at the Walton Centre NHS Trust since 1992 and set up the MND service there. She has been honorary professor of neurology at the University of Liverpool since 2006 and principal investigator for over 130 trials.
Prof Young has written over 185 papers; been an editor of Cochrane Neuromuscular Disease Review Group since 2012; a member of NIHR CRN Neurosciences Group from 2014; and NIHR CRN MND Clinical Studies Group from 2010, acting as deputy chair from 2014. She is now part of the new National Institute for MND Research.
She is Chief Investigator of the Trajectories of Outcome in Neurological Conditions (TONiC) study and the complementary Factors Influencing Neurological Disease Risk and Severity (FINDeRS) study. Prof Young’s research focuses on improving care for people with MND and Multiple Sclerosis through examining their illness trajectories, assessed by patient reported measures including digital health, and investigating why these trajectories vary.