Nicola Waters

Nicola Waters

Living with MND

Patient Representative

I was diagnosed with MND in March 2019. I have limb-onset ALS, although I am lucky enough to have a slower progressing form.

I am passionate about addressing the need for new treatments for our community. As a result, I was part of the United 2 End MND patient group that campaigned for more research funding and the formation of the Institute.

Before MND, I worked as a civil servant in Whitehall on energy and business policy, and at the University of Essex. I grew up in Wales but I now live in north Essex with my husband and two young sons.